Saturday 11 August 2012

Chapter 4: It’s not personal, it’s business


As I said in my last entry, I am thankful for cancer research.  No worries, this is not an entirely narcissistic comment.  Yes, the presence of the cancer research field provides me with a job.  But more importantly, I would not physically be present to write this blog if advanced cancer treatments hadn’t saved my life.  And yes, that is a little melodramatic . . . .I apologize.

            When I picked up this book in Chapters and decided I needed to read it, this urge was purely to fill a scientific craving.   However, within the first pages, The Emperor of all Maladies quickly became personal.  Throughout this book, Mukherjee follows one patient, a woman named Carla who was diagnosed as an adult with childhood leukemia, or acute lymphoblastic leukemia.  The story struck home.  I, as a child, was also diagnosed with leukemia – in my case, the more common leukemia in adults, acute myeloid leukemia.  Through Mukherjee’s words, I felt her bone marrow aspirations, I endured her chemo treatments, I understood the dramatic emotional and physical changes of her life, I believed that one patient impacts their physicians on an emotional level.  Carla’s story was my story. 

            Apart from my connection with Carla’s journey of survival, the story of leukemia and leukemia research reinforced how blessed I am to be alive and functioning as most other young woman.  If I were born 5-10yrs earlier, my doctors might not have shown such optimism in my prognosis and my parents may have prepared to bury their child.  The history of leukemia research, particularly in children, is truly astounding.  In the late 50’s and early 60’s, physicians including Sidney Farber discovered new chemotherapeutic agents (thanks to WWII) and in their desperate attempts to test their drug, experimented on children relegated to the “ghost floor" of the hospital where they waited to die.  Miraculously, these toxic agents improved the lives of some children.  With years of experimentation following, along with the discovery of various chemotherapeutic agents  (I’ll spare you the scientific details about how these work and their differences), an effective treatment for leukemia had not been worked out until the late 1970’s.  Diagnosed only 10 years later, I barely made that mark.    

            I never meant for this blog to become so personal.  But alas it has.  And like my occupation as a cancer research is not motivated by personal experiences, this blog follows the Godfather’s advice: “It’s not personal, it’s business.”